We would try and do normal things like go around to my sisters house and take him to play with my nieces and nephew but he would get very scared and want to go home. But when my niece Gemma would play with him it calmed him down and he would smile at her and touch her face, that was lovely to see.
We were due to go for his transplant in May 2003 but when we got there the Donor had anemia and we had to go home for another 5 weeks!!! So disappointed!!
Over the next 5 weeks Joes condition worsened so much, he couldn’t walk properly, couldn’t see hardly and was completely reliant on me for everything now, his tantrums got worse and he would cry so much, all I could do was cuddle him and make him feel safe. He would touch my face and smell me and he knew it was his mummy and would calm down. We would snuggle up in bed I would still read to him, just to give him and me some normality. I found it so hard doing everything on my own, people would help occasionally but Joe wouldn’t go with anyone else so it was hard to do a lot of things but we managed. We went out for a walk in his pushchair with my sister and nieces and nephew just to the train station around the corner from us and we had this picture taken together and he smiled for the first time in ages and it will always mean a lot to me, our special time together before all the tests started again.
It was time to go back into Sheffield hospital for his Bone Marrow Transplant it was June now, 6 months since he was diagnosed, he had lost so much in that time but we still had to give him a chance!!